Awareness.


So there I was sitting at my desk at work yesterday going through a bazillion work emails and in my inbox I ran across one from a friend. A friend whose sweet little boy is just 3 months younger than my Lila.

He's precious. And ridiculously cute. And is the youngest brother of three.

And, he has cystic fibrosis.

Now, I asked Aidan's Mom if I could write this post - and I want to explain very clearly that it is being written to do one thing: to spread awareness.

See, I had no idea that cystic fibrosis affected about 30,000 people nationwide. And more importantly, I had no idea that because it's considered an "orphan" and "rare" disorder and is therefore not offered ANY federal funding.

GASP.

Imagine that.

Go ahead, put yourself in those shoes, my friend. Or, put your baby or child in those shoes.

No government funding? Why, this is where we need to help out.

Watch this movie about Aidan. And I dare you not to tear up.

Again, I'm not writing this post in an attempt to exploit this situation, but in an attempt to celebrate this little sweetie's determination and to support him. It takes a village, doesn't it?



So if it behooves you, please give $5 in honor of Team Aidan in the 2011 Cleveland Great Strides walk.

It'll be the best $5 you spend today. FOR sure.

Aidan's Mom and Dad have reached 50% of their goal as of Monday... (see below).

(You can click to make larger.)



Oh, and here's a little note from Aidan's Mom about his health:
"Aidan is doing really well and we actually go into the CF Clinic Tuesday for a visit and to see how his weight is progressing. He is on lots of meds, but they are helping and he seems to be getting used to it."
GO TEAM AIDAN!

For more information and to donate, click here:

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5 comments:

  1. Wow. . .thanks for sharing K, just made my donation! Please keep us posted on Aidan's progress!

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  2. This just breaks my heart. I will donate! :-(

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  3. This is a beautiful post and thank you for writing it. Both my aunt and uncle (my mom's sibs) had this horrific disease and my family has been greatly affected by it--as have so many others. Blessings to Aidan's family as they battle this disease.

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  4. I cannot THANK YOU ALL enough for your support.

    My heart is smiling.

    ReplyDelete

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